Thursday, October 23, 2008

Our Appointment Today- A Set Back

Well... we went into today's morning appointment thinking we were getting some treatment info... some dates... etc...

They took 20 viles of blood... and will be doing type matching for the transplant..

When Jackie and Dr Strair talked to us, we heard some things we were not expecting...
There is one new bump since last week. The doctor is concerned about the aggressiveness of the leukemia.... and made it very clear that if Chris were an older guy, transplant might not even be in the discussion right now.. that was hard to hear...
Basically, we knew this was a very serious disease... his version is rare.. so there are much less statistics on this type
Going into transplant with this level of activity back in his body makes it a lot harder to fight...
They are working rigorously on getting a date from the donor..and we are praying he is available ASAP... We found out the donor is male and 23!!! That is good news. the younger the better and same sex is always better as well
Additionally, if this donor isnt ready soon enough, we have 2 other exact matches who have been contacted... they are both male and 30-35 yrs old.. some people cannot even find donors... so we are lucky...
They gave Chris more pain meds today including a patch so that he isnt so uncomfortable over the next couple weeks... he is also starting an oral chemo tomorrow... we want to try to stop or maintain the new leukemia activity now.... so...
Chris will have standard pre-bone marrow heart and lung tests tuesday and a bone marrow biopsy on wednesday...
and as soon as we hear from the donor as far as a date, chris will hopefully be ready to go into transplant... we are now praying we can pause or slow down the growths until transplant.. its crucial for the bone marrow to be able to happen
Its going to be a harder fight.. there will be more leukemia for the new immune system (Donor's immune system) to find and kill...
I am not going to lie... we got very emotional... Chris and I were not prepared to hear the doctor and Jackie talk about how much more serious it is now nor how worried they are either.... I was holding in emotions but Chris broke first... then Jackie cried... she is so awesome... with all the shit going on, having an aggressive awesome team but that is human and has emotions makes it more comfortable... it sucks... now we just wait to see how the chemo oral pills work and how soon they can get him into transplant..
I believe in God more than ever and I know unfair things happen to people often... but I am trusting and hoping that after all the shit we have been through, in life, and especially now, that 3 donors is God's blessing.... and if you are meant to beat cancer, you are going to beat it no matter how bad things are,, A 23 year old's marrow should be pretty damn strong and working!

Anyways, its been a rough day for us... again, if you pray, just pray for Chris... I believe God is listening... Thanks everyone for your emails and comments and everything...
Love ya!