Saturday Update

Well....
I got to the hospital today ... I only went for an hour because I had Sean's 1st Birthday party from 12 to 4...
Last night, Chris had mentioned he wanted me to bring his laptop.. SO I did

Anyways, my parents were picking me up from the hospital on the way to the party...

I walk into Chris's room and he has a new nurse Lois...
She looked familiar... turns out she works across the street at the cancer institute... i think she came into the bone marrow class we went to in October.. she said yes...
Turns out she was a wonderful nurse to have because she worked here in the past and works per diem now once in a while... she knows so much so i actually got answers ...

Here is the point of the day.. when I walked in at 10:15.... chris had oxygen on his nose.. :( he had a fever 102.3 awwwww
The did blood cultures and took a chest x-ray. She had already cleaned him up 3 times.. but small amounts...
He was waiting for them to come get him and take him to xray his belly.. Just to check for progress or to make sure.. no emergency.. but want to make sure since he has the fever...
She had just given him ativan and morphine... he was out of it... talking silly... once in a while he made sense but it was so garbled
I was texting jeanie and he was telling me not to worry about it.. lol he didnt even realize it was not his phone... and then i told him to get better cus i missed him at home (i was crying a little and didnt want him to think i was too worried about his fever) and he said "we are gonna be fine..."
Then i cant remember exactly what i said about getting better but he replied "oh i know its gonna be a girl".. i asked what? and he said "our baby" awww it broke my heart.. but i wonder what he was thinking about.. our future? babies? and the poor guy is so miserable and sick... too bad its gonna cost $25000+ for fertility to use his stored "boys" and attempt getting pregnant...

Anyways.. i went to the party.. and i am so worried about him...

Funny thing is... a few days ago chris said something like "i wish they would just find something wrong.. but nothing that bad.. that maybe will make it easier to fix what is wrong... fix the diarrhea"
He is on so many immunosuppresents making it easy to catch bacteria.. but drugs that could maybe be causing some diarrhea... he definitely has Graft Vs Host BUT it could be slightly better (seemed to be getting better last weekend) and now its back to same old frequency.. could it be the pentastatin? i am not a doc but this is all so overwhelming..
anyways...
I went back after Sean's party... and his xray was over... temp was down to 100.3 or so
He had thrown up a couple times... he hadnt thrown up in a month... so it must be from whatever is going on in his body

Tonight, Sophie is back.. wooohooo
He spiked back to 102.6.. they gave him more tylennol and then some other med to bring down temp... Blood pressure is good.. the ativan is still not totally worn off... but he was telling me i needed to be his angel when he was shaking and really hot.. i gave him ice chips and he is sleeping nicely now.. i think

The blood cultures came back positive.. so he definitely has an infection.. they havent isolated which one yet though..
Xray wasnt completely read but if it was something bad it woulda been known by now...

Tomorrow is superbowl.. i hope he is more talkative tomorrow and i hope he has a better day..
I keep praying. .I feel so bad for him
Jolenta from the 5th floor stopped down this evening and we chatted... she told me how much she admired me for being around all the time..
She said she has seen countless people file for divorce after their wife was diagnosed... or cheat in their final days of hospice. .i was shocked.. thats why you get married for the right reasons.. how can anyone do that? thats awful... ugh...

anyways... so i will leave soon for home...so he can rest.. and hopefully tomorrow have a better day...
Prayers tonight.. as always

Hopefully the antibiotics that they started today will kick in and things wont be too tough tomorrow

Sophie told me tonight that the steroids he gets mask a fever often.. soooo he could have had something brewing for a few days and never spiked...
MAYBE.. my little prayer.. is that that is why he has not continued getting better after his diareaha seemed better last weekend... i am praying....
so...

love you all
enjoy the superbowl tomorrow
say a little prayer for my Chris...
xoxoxo Jenn