Friday morning... Christmas is over :(
I slept like a rock... i woke up Friday and felt like I needed another 10 hours of sleep...
I went to get lunch with my dad-- then I was getting ready to leave and Chris called me!! I havent gotten a call from him in over a week.. he has been too out of it use his phone... He told me he ate breakfast (not just a boost) and he ordered lunch... however he told me he ordered chicken parm!! oooh boy
So I went to see Chris-- Vivian is his nurse... she took care of him back in June... and was super pregnant then... She had twins and is back now :) She is an awesome nurse... his lungs are getting better.. but they are distressed from all the fluid and inflamation he had for a week... slowly but surely they will heal... he really needs to use his spirometer that he hates... He wants to get out of bed but isnt allowed yet because of the weakness in his body... and breathing was so distressed... physical therapy needs to come and assess him before he is allowed to get into a chair.. annoying... he is tired of being on his butt.. and sitting up in a chair would be great for the lungs... He wants to sleep through his discomfort.. He is not happy that he cannot have dilaudid...
Vivian had talked to him about ambien for the night, to help sleep.. and I reminded him that he had Xanex on order... they gave it to him monday when he had a restless day before getting transferred to ICU
Anyways, his food comes.. he eats some chicken parm and Coke.. and he threw it up.. He realized it wasnt a good food choice.. his belly hasnt eaten in 3 weeks.. its not ready for sauce... so he ate pretzels and that was much better... Boost too
Doctors said he had ativan on order for sleep, as well as Benedryl and Xanex.. the anti-nausia meds also help with sleep
Christine Rabbath came to visit.. she brought cookies for Chris and Christmas gifts... Chris loved it... Devils shirt .. he was pretty sleepy but big grin appeared when he saw the Devils shirt.. and Starbucks ornament ;) I got a matching one from them... yay! After visiting with Chris, Mike picked Christine and I up... he was driving Ben around for a nap while Christine was up visiting Chris...
They took me out to dinner... Ben is so adorable... awwww
Sophie came on for the night shift... Love her too.. she is so sweet
She takes really great care of Chris....
Anyways, Chris just wanted to sleep.. got his Ativan... and I hung out for a bit... was gonna leave soon
Then, I went out in the hall and saw Dr Sadov... Chris loves him... he wanted to come in and see Chris.... so I talked to him about Chris's progress and he said Chris was doing much better than earlier in the week. He said he was scared on Monday ... but Chris was doing so much better now
We go into the room, and Chris was in serious pain.. he had an IV in his arm (in addition to the pic line) and it was super painful all of a sudden...
Dr Sadov talked to him.. Chris said he wanted to rip the arm off.... so Sophie came in and Dr Sadov went outside to order some pain meds...
In the meantime, Will came in to help Sophie (Will is a tech) and Dr Sadov walks in saying "I ordered some Dilaudid prn for him for the pain" sophie, will, and I all turned and looked at the doc like he was crazy... Poor Dr Sadov had no idea that dilaudid was taken off the orders because it made Chris hallucinate...
So then he understood while we all looked at him like that.
He remembered that morphine didnt work for Chris but that was when he had painful sore throat... so he ordered that
I went back in the room, Sophie had already taken the IV out and it was a little better
Then we gave him a hot compress... Chris fell asleep.. didnt even need pain meds
I said goodnight and went home
Saturday morning, I woke up and cleaned up a bit at home... eventually got myself together and went to see Chris..
I get there and Vivian tells me he is medically doing fine.. but emotionally rough day... he wants to go home :(
So I went in and Chris told me he wants to go home... I gave him a pep talk... yadi yadi.. reminded him of why he is there and that he is getting close to going home
He said his eye and not being able to see well is killing him.. I feel so bad for him
that must suck
He is saying he can get his meds home and recover there ;(
we talk and he is better... he was even throwing some things around today...
His oxygen is gone!! no more tube in his nose... he is breathing much better
He ate some food and stuff today
Diareaha is less today so far... steroids are still decreased...
Vivian is awesome.. she was encouraging him and I love her
he is in his beer hawaiian shirt that Dana and Chris Cullen gave him... he looks so much more like himself
He seems better
My parents came to visit... they are so happy to see how much better he looks
Then i went to dinner with them and they dropped me back off
I will be here for a while tonight.. but he is sleeping.. so thats good
Physical Therapy came today and they said they will work with him more on Monday...
I talked to a guy in the hallway.. his wife had a transplant and she went home on Day 10.... 12 Days later she was back in the hospital.. thats when her graft vs host came on.. and she has been here for 2 weeks
Chris is at Day 16... Tomorrow is Day 17... he engrafted fast.. and his GVHD came quick
Hopefully he continues to improve and gets his physical therapy going on Monday... he wants to get in a chair so bad.. and he wants his eyes to work :(
Tomorrow Chris's dad and brothers are coming down to visit... so that will be very nice... that makes Chris happy... and then Jeanie is coming at night to hang...
Thanks cousin Jen for the Christmas card...
talk to you all later
xoxox Jenn
Aunt Ro sent the firetruck and singing reindeer (or moose)
Chaplain Sharon ran the Philly marathon and had our names on the back of her bib.. Chris wanted a photo of her from the race.. and she surprised him with one framed that she wrote on for him... 
Chaplain Sharon ran the Philly marathon and had our names on the back of her bib.. Chris wanted a photo of her from the race.. and she surprised him with one framed that she wrote on for him... 
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