Well, I woke up at the hospital.. Chris is feeling better...
Tanya said goodbye :( Won't see her til Monday or Tuesday...
Tatiana is on again for the day...
I hang out with Chris in the morning til its time for me to go to work
Dr Hart of Infectious Diseases comes in... examines belly... says he feels much improved down there
I leave for work.... Chris calls me and tells me that Dr Strair came with Dr Harrison today...
They are doing the bone marrow biopsy today. Tomorrow, we should have preliminary results...
Ahhhh stress...
They are feeling confident... Chris is feeling much better... belly hurts less... Physical therapy is happening... fever is gone...
He also tells me that his triple lumen port thingy is leaking.. they are going to have to do a new one....
After work, I ran some errands for Chris... and went home to freshen up...
Meanwhile, my brother came to hang out with Chris around 5 or so... he was here for a few hours while i was still running around..
Oh, side note, my brother somehow ate a peanut accidentally this morning... it was an oat bar, but musta been made on a machine that processes nuts... he called me this morning and WAS going to go to the ER.. he was swollen and icky... but, he decided to go home and take benedryl cus he didnt want to wind up with a $100 co pay from ER visit... ugh i coulda smacked him. luckily he is ok.. but anyways...
So, they started an IV in Chris's hand so that they can still give him fluids... Dr Thomas (3rd year resident) came in and checked out the port. She removed the port so he doesnt get an infection.. he will get the new port tomorrow.. we have Isabel again tonight... Chris is feeling good... he didnt need as much dilaudid today and physical therapy is going well...
Tomorrow, I am working from the hospital because Dr Strair will be coming again and because we will be waiting for the bone marrow biopsy results... ahhhh... We are going to learn a lot tomorrow about next steps... all depends on the results...
So, please keep Chris and everyone around here (doctors, donor, etc...) in your prayers... We need them tonight and tomorrow... Chris is very overewhelmed... I am so anxious...
More to follow tomorrow
xoxox Jenn
Thursday, November 13, 2008
Veterens Day & Wednesday.. biopsy coming tomorrow!
Tuesday morning... wake up at the hospital...hang out here with Chris...
The doctors come in and out... Dr Harrison feels Chris is 48 hours from a bed sore and tells him he needs Physical Therapy to come get him moving... and should sit in a chair when he can
Chris woke up with a temp... again.. ugh...
My dad comes to visit for a few hours... and Chris is resting.. think he is sleeping and then he chimes into conversation.. His nurse is Nancy again... turns out her friend is friends with my cousin Laura.. small world
After my dad's visit, i go home with him... do my thing at home and then shower... dad brings me back here...
The opium is working... I come back to hospital to see Chris in a recliner... physical therapy had come.. got him moving.. and into recliner.. it wiped him out but he was happy to be out of bed and in chair .. comfy.. and in a hawaiian shirt... getting red blood... he had gotten platelets earlier
Check out pic from today
The doctors come in and out... Dr Harrison feels Chris is 48 hours from a bed sore and tells him he needs Physical Therapy to come get him moving... and should sit in a chair when he can
Chris woke up with a temp... again.. ugh...
My dad comes to visit for a few hours... and Chris is resting.. think he is sleeping and then he chimes into conversation.. His nurse is Nancy again... turns out her friend is friends with my cousin Laura.. small world
After my dad's visit, i go home with him... do my thing at home and then shower... dad brings me back here...
The opium is working... I come back to hospital to see Chris in a recliner... physical therapy had come.. got him moving.. and into recliner.. it wiped him out but he was happy to be out of bed and in chair .. comfy.. and in a hawaiian shirt... getting red blood... he had gotten platelets earlier
Check out pic from today
Nancy leaves... and we have a floater nurse.. chris doesnt know her...
My brother came to visit... so did Christine Rapach...
Chris thought he could just take oxy for the pain.. but when he needs dilaudid, he gets very upset that he isnt interactive for company... We tell Chris its okay... We dont want him to sit there in pain....
We hang out for a while after they left...
I moved chris over to the other side of the bed, closer to the tv before i left.. i was here til 11:30pm or so... he wanted to sleep in the recliner... he had pillows all over...
I talked to Chris when I got home... and then I fell asleep
I missed his text shortly after.. and he called me at 415am... the power surged at the hospital and he wanted to know if we lost power.. i didnt hear my phone ring.. called him back at 445am...
we went back to sleep...
I got to the hospital Wednesday morning to see Chris before work... he was very emotional :( he didnt want me to go to work... well, he wanted me to work from the hospital... It broke my heart... He is getting to that point, just not wanting to be here... he misses bed at home.. misses home... getting frustrated
I am reassured when his nurse Tatiana seems very compassionate when she came in...
I reassured Chris to call me whenever and that i would be coming after work and sleeping here
While I am at work, Chris was told by Dr Harrison that he would not be the doctor for the next week.. Chris is upset
I talked to Chris around noon and he was sleepy..
After work i found out that Chris had freaked out... they came in to do bone marrow biopsy and no one ever told him it would be happening.. he wasnt emotionally ready for this... no one told him... so i guess he freaked, told them he needed to speak with his doctor (Strair) and between that and the physical therapy, he needed meds...
My brother came and helped Chris shave..
Then I got here and was ready to watch the country music awards with chris... but he slept...
Something about his combo of drugs made him really messed up...
He was super disoriented whenever he woke.. but he kept falling back asleep
His night nurse is Tanya.. woohoo... she notices chris is saying weird things in his state and looks lost and/or scared... apparently he got morphine in the afternoon.. for pain when he was in between drugs.. she checks with pharmacy... they feel that
POSSIBLY, the opium is making the effects of his other drugs worse....
eventually he wakes and is back to normal...
His temp is down to 98.6.. his white blood cells are going up (.5)
He says his bowels feel better
Dr Strair had come to see him at the end of the day.. he said he will be back tomorrow to talk to him
I am sleeping here...
It seems he will have the bone marrow biopsy Thursday (tomorrow) ahhhhh
This will tell us if the chemo worked or not... if it reduced the leukemia in his bone marrow.. remember, that was the goal of the chemo so we can go to transplant....
So, please pray... Chris needs some strength to get through these trying times... and pray for good biopsy results
good night Jenn
My brother came to visit... so did Christine Rapach...
Chris thought he could just take oxy for the pain.. but when he needs dilaudid, he gets very upset that he isnt interactive for company... We tell Chris its okay... We dont want him to sit there in pain....
We hang out for a while after they left...
I moved chris over to the other side of the bed, closer to the tv before i left.. i was here til 11:30pm or so... he wanted to sleep in the recliner... he had pillows all over...
I talked to Chris when I got home... and then I fell asleep
I missed his text shortly after.. and he called me at 415am... the power surged at the hospital and he wanted to know if we lost power.. i didnt hear my phone ring.. called him back at 445am...
we went back to sleep...
I got to the hospital Wednesday morning to see Chris before work... he was very emotional :( he didnt want me to go to work... well, he wanted me to work from the hospital... It broke my heart... He is getting to that point, just not wanting to be here... he misses bed at home.. misses home... getting frustrated
I am reassured when his nurse Tatiana seems very compassionate when she came in...
I reassured Chris to call me whenever and that i would be coming after work and sleeping here
While I am at work, Chris was told by Dr Harrison that he would not be the doctor for the next week.. Chris is upset
I talked to Chris around noon and he was sleepy..
After work i found out that Chris had freaked out... they came in to do bone marrow biopsy and no one ever told him it would be happening.. he wasnt emotionally ready for this... no one told him... so i guess he freaked, told them he needed to speak with his doctor (Strair) and between that and the physical therapy, he needed meds...
My brother came and helped Chris shave..
Then I got here and was ready to watch the country music awards with chris... but he slept...
Something about his combo of drugs made him really messed up...
He was super disoriented whenever he woke.. but he kept falling back asleep
His night nurse is Tanya.. woohoo... she notices chris is saying weird things in his state and looks lost and/or scared... apparently he got morphine in the afternoon.. for pain when he was in between drugs.. she checks with pharmacy... they feel that
POSSIBLY, the opium is making the effects of his other drugs worse....
eventually he wakes and is back to normal...
His temp is down to 98.6.. his white blood cells are going up (.5)
He says his bowels feel better
Dr Strair had come to see him at the end of the day.. he said he will be back tomorrow to talk to him
I am sleeping here...
It seems he will have the bone marrow biopsy Thursday (tomorrow) ahhhhh
This will tell us if the chemo worked or not... if it reduced the leukemia in his bone marrow.. remember, that was the goal of the chemo so we can go to transplant....
So, please pray... Chris needs some strength to get through these trying times... and pray for good biopsy results
good night Jenn
Subscribe to:
Posts (Atom)
Posts
