New Pics

this is the new toy i bought rex... couldnt get a good pic of him in it...

































me and chris this past weekend

chris eating italian ice with blanket on his head

more funny faces with blanket on head

Tomorrow is the Big Day- Day Zero

I know I have been slacking... no updates in 72 hours... sorry

Monday Dec 8th- I was driving to the hospital in the morning... Called Chris and found out he had thrown up at 6am :( Just once... but they gave him more Ativan...
I went to work.. barely talked to him during the day... No more vomiting though...
They started the immunosuppresents... and they gave him red blood... so he was pretty groggy...
When I got there after work, I asked him if they did the ecco cardiogram... and he was in and out of sleep.. i finally understood him.. they did it in the room...
I stayed there til bedtime but he was sleeping most of the time anyways... Padma was his nurse Monday night... she is a good nurse... I know he is taken care of when she is there

Tuesday morning I went to the hospital... still sleepy... they have him on round-the-clock zofran and compazine... ativan when he needs it... Anne was his nurse.. her last day... she is gonna have her baby in the next few weeks... He slept all day...
When I got there after work, he tried to have some canned pears and his Boost... but didnt eat much else..
I did get him to sit in the recliner... I washed his legs and feet and gave him a pedicure and moisturized him.. his skin has been so dry... peeling on feet... so it was time to pamper him.. now i know how to get him in the recliner... Then he got back into bed... Nina was his night nurse...
I asked Mary Kate after work if he could have Nancy as his nurse (she was coming back after like 6 days off) but because there are so many pregnant nurses, Nancy might be needed for chemo patients (prego nurses cannot do chemo)... But she understood and told me she would do what she could... Chris feels very comfortable with her because she takes very very good care of him.. most of the nurses do.. but she really goes above and beyond.. i know she cares and looks out for things.. she is proactive... My brother also surprised us with a visit for a while..
Chris talked in his sleep a lot again... he was trying to lick something in his dream.. later on he was using his hands in a driving or boxing motion.. i wish i had a video camera.. awwww
Nina was on for the night... all is good
I left late at night and went home...
My dear cat who always greets me and jumps from the bed into my arms tried something new Tuesday night.. he jumped from the floor onto my shoulder ... what a high jumping maniac... i know he loves me and thinks he is a human child of mine.. but he is nuts...
I went to bed

Wednesday morning (today) I saw Chris this morning.. still icky.. but ok.. Melissa was his nurse today... Next best day nurse we coulda gotten today... she is a sweetie.. so we are happy...
After all he has been through, its just so much more comforting to have familiar nurses (not ones who he hasnt had before) when he is going through the transplant and the days following...
I went to work and talked to him briefly...
On my way home i talked to chris and he had thrown up today (2nd time in 3 days)... he threw up some pills... and crackers.. hadnt eatten much..
When i got to the hospital, Nancy (see, she is still involved) yay! tells me that she called pediatrics oncology or something and was told about another anti nausia drug.. they had just given it to him....
It worked a lil so far.. he nibbled on some of his dinner... and seems to be a little better

Tomorrow (Thursday) is the big day... Not sure yet what time the infusion will be (transplant or infusion of stem cells) It depends if they were transported tonight or if its flying in tomorrow...
They will give him the new stem cells and apparently it comes in on ice.. its super fresh.. and we dont know if the donor donated in NY, Cali, Scotland, Montana.. could be anywhere.. so it depends how far it traveled and all that good stuff... but tomorrow is the day
I am gonna work here from the hospital tomorrow..
They will be giving him benadryl, anti rejection, tylennol, etc etc... so he will be sleeping during it i am sure.. but i want to be here for emotional support.. its a big day..
apparently, bone marrow transplant survivors call it there new birthday... so anyways...
I am hoping to see Sharon tomorrow... or soon if not tomorrow
Lew called him.. i think they are talking now...
My mom came with me today after work.. she brought a clean afgan because i want to take Aunt Ro's home to clean (i imagine he should not use it for 5 weeks without washing it once in a while since the room is supposed to be as sterile as possible)
After tomorrow, we wait... over the next few days, we wait to see how things go... and hope he doesnt get too sick... hope that the marrow doesnt reject his body or vice versa...

anyways, Xanex time is coming soon...
more prayers are requested... thanks everyone for all your texts and calls and emails and whatnot... i am still getting back to some of you.. its been very busy.. sorry for the delay
Let me know if you want to visit.. I will be around - company is good.. especially when chris is sleeping a lot...

I have a lot of pictures I will post later... stay tuned

xoxox Jenn