Thursday, January 8, 2009

Waiting for Bone Marrow Biopsy Results & Quick Update

Yesterday, I came back to the hospital after the Rutgers Job Fair at 315pm...

Karen was with him one on one cus she is training and Jen was technically helping.. but Karen was assigned to just Chris :)
He did his physical therapy and only had 2 Bowel Movements during the day...
They also did the bone marrow biopsy
They will have preliminary results Thursday or Friday...
They are checking to see if there is any sign of leukemia in the bone marrow.. or any infection
Nerve wracking.. waiting

At night, Jen was back and Chris would wake up and be so uncomfortable... he cannot get in a good position in that damn bed...
Thats his biggest complaint...
I left at 11pm or so... I felt so gross cus i slept at the hospital Tues night and hadnt gone home all day Wednesday until 11pm...

Today, Thursday, I went to work and came to see Chris over lunch. Nothing too new. Chris feels blah.. He doesnt even want to listen to music like he usually did.
He isnt acting depressed but i cant imagine how he wants it totally quiet... awwww
He did physical therapy again... he feels like he is getting stronger everyday.. but still cant take more than a couple steps and needs help to do that.. so hopefully by Sat/Sun, he will be better with that... i cant wait to be able to walk the halls with him

Anyways, i was told he went most of the night last night without a bowel movement *until 6am or so)... and today he had 3... so its not getting worse

At lunch, chris slept for most of it.. but Anne told me they still had no results.. were hoping to by end of day but maybe not til tomorrow

Well, I got here after work and found out there were no results...
Liz said she asked Strair but he said he was calling them again... and he had left.. so I assume he didnt get results cus he woulda come in to tell chris if he did...

So, I will be coming back here in the morning to see if they have anything before I go to work...

He had Liz during the day and she takes such good care of him... Jen is here again tonight and the consistancy is nice... she said he did good...

Now the damn waiting for these results..

Well, he is sleeping now.. so I am gonna get my stuff together and go home...

Lots of prayers tonight for good results tomorrow...
Tomorrow he also gets a 2nd dose of Remicade for the GVHD.. hopefully it starts making the diarrhea slow down...
Oh, and that kid who was next to Chris since this whole transplant.. the one who went home a few days ago... he is back :( diarrhea still... makes me scared but also realize that if chris were walking, maybe he woulda been sent home and had to come back.. that kid really pushed to get discharged....

ok, i will update tomorrow with results
love ya Jenn