Sunday, October 26, 2008

People in Our Life... Some Details.. photos

OK... so I posted some new photos on the main page...



I know people in Chris's world dont know people in my world and people in my world dont know people in Chris's world.. and some know both



I posted some pics of people with captions so you can put a name with a face and understand who I am referring to

I know its hard to know who I am talking about when I am throwing out names.. but I am trying my best


My brother Chris, lives at home with me, mom, dad, and Chris

































Jeanie, Christine Rabbath, Christine Rapach- best friends of mine -- like sisters


Jeanie, lives 5 minutes away, married to Brian with 4 yr old Olivia... been attached at the hip since we were 17
Here are more pics of Jeanie with Brian, and of Olivia


















Christine Rabbath, lives 25 minutes away, married to Mike with 8 month old Ben, her family is my family... went to school together kindergarten thru high school



























Christine Rapach, lives 10 minutes away, single... reuninted when we planned high school reunion last year... always there for me


























Lauren, my 20 year old cousin... her dad is my godfather.. she is like my lil sister

























My mom, Loretta, works at a child care center


















My dad Vito, works for Budweiser in Newark NJ, standing here in Chris's storage unit when it was still empty

He was my saving grace from june til september end when he was on disability and able to drive chris to appointments



































Brother Lew, Air Force , stationed in Florida, has awesome gf Jen





















Brother Matt (2nd oldest Waxmonsky boy... only Peg separates Chris and Matt in age) lives in North Jersey


































Then there is Grandma Peters, Aunt Cathy, Aunt Ro, Grandma Phyllis, Ronnie, Gary, Jimmy, Jeremy, my friends at work Ann, Roxy, Tash, Paula (who brought us special things from Fatima), Gwen, Jess, Amy, Jeremy W, Cass, Lisa, Cousins Bethann, Leeann, Gina, Jaime, Patti, Shannon, Christine, Meredith, Mike R, Carol, Rebecca, Ann Marie, Mrs R, Mrs C, Kristin, Dana, Adriana, Kathy B, Eileen, mom's coworkers, Melinda P, Jen B, Jen L, Michelle, cousin Jen, etc etc who I will write more about... people who continue to offer prayers, suggest help, tell us they offer prayers at their church, etc etc.. more descriptions and lineage and photos to come

We had visitors today--- and more hospital "stuff"

OK... so Chris is getting lots of Delaudid ( major pain meds through IV) and steroids.. they are trying to work out the right doses and see if his pain gets better....
They did a mugascan yesterday which tests his heart to make sure he is good to go through the transplant... Today, they did a catscan of the head to make sure they can do the spinal tap tomorrow... They always want to check the spine because thats where his original leukemia presented itself.. and because the leg pain could always be indication of spinal cord compression

They did not think his strength, symptoms, etc seem to be spinal compression which is I think why they arent rushing to do an MRI.... Also, they did an MRI 2 weeks ago which only showed 1 lil nodule... and no spinal compression.. but it seems if his pain isnt under control in the next day, they will be scheduling an MRI... with anastesia of course
also, as long as catscan from today of his head was ok, they should be doing spinal tomorrow...
pulmonary (lung)test would be tomorrow too.. thats another pre- bone marrow transplant test...

Aunt Ro and Uncle Les came today!! I got to meet them... Love them love them love them
They brought Halloween balloons and scarecrow plant and snacks and magazines... it stinks they are all the way in Maryland... but it was so great to see them... it made chris so happy, i know...
They are not only great family... but they are some of the smartest people i know... and Aunt Ro is in the infectious diseases industry so she has been very helpful with checking into chris's diagnosis and treatments.. its so reassuring and helpful (forgive me Aunt Ro, if I messed up describing what you do)

Lew and Matt will be up this week.. so thats great...
we do not know how long he will be in the hospital this week.. depends on getting his pain under control and what they determine is really causing the pain... the pain in hips and chest (sternum atra) is an indication stuff is going on on his bone marrow)...
Bone marrow biopsy was supposed to be outpatient Wednesday.. if he is still here, they will do it here

Remember the Doc (fellow) who couldnt handle the spinal and told us her brain doesnt work?? yea, well i requested that she does not do the chemo push during the spinal since she makes Chris uncomfortable... the nurse even told the doc in charge.... and when i talked to the doc, he tried to tell me she wouldnt be alone (the neuroradiologist is there) but Chris doesnt want her there.. so i re-iterated the issue... Hopefully my request will have worked and Dr Naylor will do the spinal .... or someone else... just not the doctor we dont feel comfy with

ok... well i am going to sign off of here... have a good week everyone! we will keep you posted again tomorrow

xoxoxox