Thanksgiving was great... we ate.. we watched the Cowboys win... Chris and I watched "A Christmas Story" and all was good (it was the first time I ever saw it!)
Friday, we got to the hospital for his scheduled spinal tap and MRI. He went to same day medical and checked in. The MRI was to be with anastesia... and MRI was supposed to start at 1pm.. Ha!
I left when the spinal tap was starting. It was supposed to be back-to-back procedures... I went to JFK to get his barium for the next test. The Robert Wood nurses called to tell me he was in the MRI holding area... of course, I questioned why it wasnt starting... But i went back and Chris was still waiting. Anastesiologist hadnt gotten there. They finally took him after 3pm..
I went to the lobby to wait. It was a 1 hour scan and 1 hour in recovery... ha... After 6pm, I was able to go see him... His blood pressure was low and his heart rate high... but FINALLY we were able to leave a lil after 8pm...
Oh I forgot to mention, remember the doctor who Chris wasnt fond of? Her brain wasnt working... she didnt look comfortable with the spinal? yea... she wound up doing his spinal. Apparently, afterwards, the nurse was bullshitting with Chris and he thought the doctor had left and he was saying some "not so nice" stuff about the doc to the nurse... Then the nurse was like "um, she is still here" and the doc appeared... Chris felt bad but he told her why he was upset... and that was that... oops
We get home.. Chris has been walking better every day ... even the stairs are getting better... strength is getting better... just his knee is bothering him.. but he had a pre-existing knee issue... years ago, he had a pitella (spelling?) issue and had some work done on it... and it acts up when it is raining or cold or whatever..
We got home rested, etc... 4am (Saturday) Chris drank bottle 1 of the barium..
Then we went to bed again.. 7am I gave him necessary meds and no insulin. Pet scan required sugar under 200, and at 7am it was 119 so we did no insulin and no steroids.. we didnt want sugar to get too low, cus he isnt allowed to eat...
So, we go to JFK Imaging for 8am.. and the mammo/bone density receptionist is there.. the MRI girl is there. but the petscan person isnt there...
Dont get me started on how mad I am...
By 845am, the mammo girl gives Chris his barium bottle #2 to drink and a form for us to start..
Then the girl for petscan arrives with a trainee... walked in like she had nowhere to go..
Mind you, Chris has a walker and has gotten up a few times to prep for this test..
So, trainee and worker walk out in the lobby (behind us) and say "is anywhere here for a petscan?" and then when she sees us, she says "wanna come back and get registered?" all non-chalant.. ugh... so, I grab the cup, the barium bottle, the clipboard and my purse and help Chris walk to the registration room.... I wanted to yell.. but i didnt..
When we got back to the waiting room, I said outloud "maybe she should train the new girl to not be late.. we didnt want to be here at 8am for no reason" but i doubt they heard me... i will be writing a letter or calling
So, they took him in.. the petscan guy was sooo nice...
2 hours later he was done and they brought him out...
We went to get bagels and go home to rest
I made chris a dentist appt because they suggested to get a cleaning done before transplant..
So, I drove past a place near home the other day and made him an appt..
We got there and it was pretty simple... nice place... plasma tv above each dentist chair.. and they showed him his x-rays on it immediately after taking them...
he has 2 impacted wisdom teeth but no cavities (which is good for transplant)
We got home, ordered pizza and subs, and then Chris's dad and 3 brothers arrived (Matt, Danny, and Tommy)
Then my cousins Gina and Laura came...
And a little later, Christine Rabbath and Mike came with little Ben..
It was a busy but very good day for Chris
His fam brought Chris a singing fish.. its very funny
And, Gina brought Chris an autographed Danyko Devils hat.. He LOVE LOVES LOVES it.. one of Chris's fave Devils ever... He is so excited.. Gina hit the nail on the head. Her brother (my cousin) Eugene has a show on the MSG network and works with Danyko so he hooked her up...
He signed it "Keep Fighting"
Ben is adorable.. growing so fast... stood up on his own already... so close to walking...
We went upstairs to bed, and hung out for a bit... Sunday is Chris's last day home..
I will post pics of Saturday in a little while...
And, I will post more about Sunday and then Monday...
ttyl xoxox Jenn
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