Back in the Hospital - Ugh

Well... late Wednesday night after hanging out, having good conversation... Chris, my brother, and I.... all of a sudden, Chris sorta spaced out... I asked him if he was gonna eat his jello and he sorta looked at me like he didnt know what i was talking about...
He snapped out of it pretty quickly... and I asked if he was ok... took his sugar, blood pressure, and temp... all was good... we decided he was probably tired...
He also took his fentinol (pain) patch off earlier in the day (he saw a commercial about its side effects) and wasnt having pain anyways...
So, we went to bed.. I talked to him,,, he was a lil weird at first with some odd focus on the tv.. but then just talked to me til he fell asleep...
I watched him for a couple hours... he was ok, except waking up with some gas discomfort (sorry, too much information )
Anyways, Thursday morning, he seemed fine. I went to work. He text me a bit... and then he fell when trying to get up to use the bathroom
My mom left work (thank goodness) to go help him up. She called me after 3 to tell me he was acting disoriented...
I called Dr Strair... I explained his moments of disorientation... Dr Strair said if he snaps out of it within a few seconds it is ok, otherwise go to the emergency room
I got home from work.. Chris was ok.. we had dinner.. started watching tv.. and then out of nowhere, he spaced out... He looked at me with a blank stare and did not respond to me asking his name or anything... so in a panic, i screamed for my parents.. Mom called 911 and I called Strair.. while these phone calls were going on, my dad told us Chris snapped out of it...
He is aware of the fact that he is disoriented.. says his brain feels disconnected...
EMS comes.. Edison Twp and a cop... they talk to him.. vitals are ok..
I grab his cell, charger, my purse and shoes and a drink.. and my mom met me at the hospital (she drove my car there for me) and my dad would pick her up
Chris wasnt able to say much in the ambulance ride... but once we got to the ER, he was whispering to me.. He was aware the entire time of what I was saying.. he would smile, squeeze my hand, sometimes talk, etc.. he was happy to see my mom too..
They only allow one person per bedside so mom couldnt stay too long... It was soooo scary watching Chris like this... Chris snapped out of it 30 minutes after we got there... and was talking to me for the rest of the night ... he told me that he saw me looking at me but couldnt reply... he remembers most of the night...
There was one other episode in the ER while we were waiting for him to go to catscan.. it was brief.. he felt it coming on... he said he was fixated on the tv and couldnt turn head towards me
He didnt blank out this time.. just a lil weird... it was brief.
They took him to catscan and took xray and he was ok.. we moved up to the 5th floor and he was admitted
He seemed better and we went to bed (after 3am)
Friday morning, we saw all sorts of doctors.. I didnt physically go into work.. i went home to change and shower and get my laptop and I worked from home for a bit and from hospital for a bit... i will catch up on the rest over the weekend
Friday (today) while i was still home, they did the MRI of his head and when I came back they did the EEG (record brain waves)... He was pretty ok during the day... but when she came to do EEG, he had an episode where he knew it was coming on... he couldnt turn his head on his own nor could be move limbs... the neurologists came in to see this, but couldnt check him out during the EEG
Of course, once EEG was over, they came to see him and he was able to move

The neurologists and oncologists seem to think these are all symptoms of seizure.. but not the kind where you shake and whatnot.. they are called absence or petit seizures.. common more in kids... now they have to figure out why...
MRI should be read by the morning... its 930pm.. 6 hours since MRI and we havent heard anything... so we will see... they have to read the EEG too
Doctors have suggested that the reasons for the seizures could be: all the stress his body has been through since june... manefestation from when Chris got hit by a car when he was 10... leukemia (in the brain, i guess.. maybe tumor)... possibly combo of medicines or chemo... a bunch of good reasons.. but once they see MRI and EEG.. they should be able to figure out what medication to use...

I came back from my stop at home (when his MRI was over) and I ran into Dr Harrison in the hall.. I called his name and he turned around and said "I am not Dr Harrison.. I am Mammal something or other...." i was dying.. he makes me so much more relaxed.. except he continued to say "thats the brain transplant surgeon in there with Chris now..." I freaked and before i could really think about what serious something they may have discovered, he told me "they dont do brain transplants.. just kidding" i am obviously not thinking but now i get it
haha... anyways, Neurologist is talking to chris and checkin him out... Harrison is happy to see how nicely he has recovered from the infection and all.. said his counts look great and nutrition is great.. he told me to keep feeding him whatever he has been eating :) Harrison comments on just getting this resolved so we can move to transplant
Earlier in the morning, Strair had come by

ok... so while i was typing this blog entry, the EEG lady came back... they want to video monitor him for 24 hours... everything he does and everythng we say will be recorded... wonderful... but when he feels an episode happening he can push a button and either of us can talk.. so they will listen to what is being said around the time of the button being pushed... sooo depending on what happens, i might need to jump up and push the button... and as i type more i am hearing that they might have to move him to the 7th floor.. the neuroscience floor for this 24 hour period..
could this get any more complicated? this tech cannot tell me what they may or may not have seen in the EEG...
Here we go again... Just as I get settled in after an unsettling 24 hours, I have to gather our crap that i just lugged here for him (his clothes and stuff)and my laptop and work so i can function here)... do i sound cranky? sorry...
Chris was so excited.. his dad called a day or so ago and wanted to come see him this weekend (at home) and now here we are...
sooo yea... thats that.. now we wait. not sure how soon we will have to move... or when i will get to bed.. or if chris will have another episode
they started giving him ativan a couple hours ago and he seems to be fine... so this should be interesting
I got Chris food from Paulie's tonight..well for both of us... so he ate good...
The 7 Tower rooms are doubles... so i would get a recliner.. they sorta hinted that i should stay with him so i can help push the button and talk... this is weird...
They say they cannot monitor him here cus its neuro equipment and whatever
They are attaching stuff to his head as we speak... the glue smells....
Ok... well i will write more once i have more info... results of the MRI and EEG and all that good stuff
xoxox Jenn