Update- Back in the Hospital Today

Ok... so I thought we were having a weekend home to relax... but no...
Last night (friday night) Chris wanted to get out of the house... knowing things could be happening fast (with complications and with transplant hopefully) he wants to be out and about when possible...
So, CVS wasnt going to have his oral chemo til after 6pm... so we picked it up, grabbed food at the Sherban Diner and than Starbucks...
Basically since Thursday night, he has the new pain patch to help with pain and lessen need for popping oxycodone... so he's got that going on.... now 24 hours later, we get the chemo pill and he takes the pill at 11:30 with night meds...
during dinner earlier, he was quite sleepy.. possibly overdrugged, still adjusting from patch with the oxy...
well, 3 hours later its 2:30am on Saturday, Chris wakes me feeling weird, trouble walking again, pain... Chris calls Dr Strair at 230am and we are told to go to the ER
My mom comes with us... They hook him up with delaudid and more drugs... they dont see signs of more spine compression ... but they are concerned.. so they admit him and increase the steroids to see if that helps.... just in case there is something going on in spine
Chris is more content with being here.... he knows he has to let them get the pain control figured out and do everything possible to get him in a place where the transplant is not postponed and happens asap
Hopefully the change in steroid doses down then up and then more up along with pain patch just messed him up...
they said steroids can cause the leg weakness he is having.. so we will see
More hospital time :( we were gonna get to the shore this weekend... oh well :(

what else? he was supposed to have a follow up at the doc Monday... was gonna have pre-transplant heart and lung function tests tuesday.. and a bone marrow biopsy wednesday..
i was stressed cus i am trying to be at work as normal as possible until tranplant time.. it gives me added anxiety... so i had rides lined up... dad is taking a vacation day wednesday...
we dont know how long chris will be here.. but they got the heart test done today.. so at least i dont have to stress about transport for monday and tuesday it seems...

Aunt Ro called today.. She is visiting tomorrow all the way from maryland... she talked to Dr Strair on the phone... she understands the clinical side....
Lew is flying up from Florida which i know chris is excited about seeing him.. and Matt will be driving down soon.. it will be good to see family... good for him ;)

Well, on my way back here today (cus i went home to nap and shower from 2:30pm til 7pm), it started pouring, of course... it always does when I have to drive to the hospital...
I stopped at starbucks for us... and I talked to God the entire way here... it helps to get crying out of the way in the car... plus my xanex from the morning was wearing off (nice how i am telling you all about my mental state) I told God somethings again, just to make sure he isnt forgetting...

Christine is here at the hospital keeping us company... they were having a heart to heart when I got here.... So, we are here... hanging...

love you all.. goodnight