Saturday November 1- wow.. its November

Photo on left is the blue chemo Chris got on Oct 30, Oct 31, and Nov 1 (15 minutes each evening, 5pm-ish) You can see how blue it is in the tubes (the green above in the bag is to protect the chemo from light)

Today, I got up and hung out with Chris for a lil while.. he was awake pretty early

I decided to go home pretty early and grab some of his blankets, take a shower, and come back to the hospital around lunch time... Aunt Cathy and Grandma Peters were going to be visiting around then...

When I got home I realized my brother was also going to visit, so when I stopped at Starbucks, I grabbed coffee for me, Chris, and my brother Chris...
Then I hung out with Aunt Cathy and Grandma also when I got there...
They always bring sunshine to the hospital ;) Aunt Cathy brought 2 6-packs of Boost... so thats awesome, because Chris loves them and really help him increase his calorie intake these days...
Grandma brought homemade rice pudding.. yummooo

Chris had been given some drugs to go along with the chemo so he was drowsy and a little funny
THe nurse asked him to let her know when he got his lunch so she could give him insulin..
Well, he lost track of time and had never even ordered it...
So, he picked up the phone and ordered, carefully...
When he hung up, he looked at us and said "6:30"
huh???? turns out they asked if he wanted it for dinner at 6:30... he said "yes"
Guess what? it was only 1:00pm or so!!!
So, I warmed up his leftovers from homemade dinner the night before and he ate that for lunch!! You had to be there, it was pretty cute that he was mixed up with time!

So, Aunt Cathy and Grandma left... my brother and I went downstairs to get Chris (and ourselves) some soft serve ice cream
Chris left shortly after.. Chris and I napped.. and then it was time....Chris wanted me to see the "cool" blue chemo... he got it for days 1, 2, and 3 (today was day 3) Its only a 15 minute chemo, as opposed to the 24-hour chemo thats been running since Day 1.. It was quite blue

The plan was to rest up and then watch a movie or 2.. then around 10 or 11 pm, Chris would get his sleepy time meds, and I would go home to sleep
I have never left Chris at the hospital before... Whenever he is there, I sleep there too.... Tonight is a first... I really need to get on this schedule so that I can get better rest ... We have a long road ahead still.. long enough that I cannot afford to get run down or sick now, and this is the most important time for me to be strong and reliable and around for him..
As much as I hate leaving him, its best for me to get home to sleep sometimes...
Chris isnt kept up by me being there, but the nurses are there for mid-night pees... I will feel better after sleeping home
So, we turn on Iron Man around 7:00pm or so... maybe 7:30... I am not as interested as Chris.. I am not really into comic stories... but Chris got tired 15 minutes in.. and I was all into it.. ooops
So, we shut it off...
I wasnt ready for bed or leaving.. but since Chris was so tired, I (we) decided to call it a night...
The nurse Isabel came in with night meds... and she felt bad waking him
She cleaned his dressing on his leg (where the bump was removed a couple weeks ago) It is still not healed so they are on top of re-dressing it... He was barely awake but asked for his night meds (the pain killers and ativan). He isnt in pain.. lol.. The nurse said she thinks he is ok and winked at me... So, anyways, I left...
I am home without him for the first time since June 6th (overnight, anyways)
Rex is excited.. keeping me company.. purring and meowing up a storm...
SO, with the extra hour tonight, we will both be well rested tomorrow, as far as I can tell
Well, I am going to go enjoy a real bed, read, and say my prayers..... talk to you all tomorrow
love jenn

Halloween...

Well Halloween came and went...
Chris had his bowl of candy out and some decorations...

I worked... and Chris patiently waited for me to get here afterwards.. he told me I took a long time today :( I needed a nap so when I got home, I took one for a couple hours but then Chris was bored at the hospital...

I brought him and Jeanie Starbucks... she was meeting me at the hospital to visit Chris....

I found out that he had some visitors .... Marc Kollar... he is on the Waxmonsky side (but from Grandma Phyllis Kollar's side.. he is actually Grandma Phyllis's brother Ted's son) So he would be Chris's cousin basically... (Aunt Ro's nephew) He is A Knight (Knights of Columbus)... and Chris was happy to see him
Also, the priest came back to see Chris.. I have to find out his name .. ooops
He is going to be bringing some scriptures
He had his blue chemo yesterday and will have another one today (Saturday)
I have to get you all a picture of that... its the 15 min chemo he gets on Days 1 2 and 3...
The other chemo runs for 24 hours for every day through tonight... (3 days)
He was pretty excited that the chemo was blue

Sharon came back to visit him and his occupational therapist for the finger came to see him and it turns out they went to high school together in Clifton

He had Isabel for a few nights as his nurse.. she is very cool... makes things as good as possible around here for him... I dont spend as much time getting to know the day nurses.. well, not yet... because i am often at work
Today we have kathy and she is really nice

I am going to go home and cat nap... see Rex and shower.. and come back here because Grandma Peters and Aunt Cathy are coming to visit around lunch time

Tomorrow, we have more visitors... Chris is excited... he took a walk with a tech yesterday so he is moving around a little more... he is eating a little bit more.. doesnt want to lose any more weight than he has to...

I think thats all I have for now

xoxoxox Jenn