Well, Thursday Night, I went straight to the hospital after work.. Except I made a stop at Pathmark for Chris
Isabel relieves Nancy and shortly afterwards, Will, the CCT, takes his vitals and he is running a fever...
At 8pm, it was 100.6.... By the time I left at midnight, it was 101.6 and then overnight it was 103...
By 5am Friday morning, it broke.. went down to 100... and then by 9am it was 99...
The doc came into check him Thursday night and said they were starting antibiotics...
Friday during the day, Dr Weinstein from Infectious Diseases came by to see Chris... Turns out he is Dr Partridge's father.. We love Dr PArtridge (she did his finger surgery and thigh biopsy)
Dr Weinstein is on board so that Chris gets the most appropriate antibiotics during all of this when he gets fevers or infections...
Its now Friday night and after stopping to get Chris pretzel goldfish (cus thats all he wants) And I cannot control myself in Target so I get other snacks and a toy for Rex... I am at the hospital.. Looks like 3 of the 11 bone marrow rooms are vacant and nurses are unfamiliar :( awww where is Isabel? and Tracey and Tanya? and Jen? so sad....
Anyways, Asante is his nurse.. we meet her.. she is very nice... turns out she is filling in cus Nina will be late and will be his nurse...
Chris eats some goldfish.. I ask for CBCs... We got no CBC printouts all week.. so I asked for a printout and hopefully get one.. I want to see where his counts are...
Will comes in to take a temp... and vitals.. and here we go again.. Chris has 100.4 temp :( they are checking to see if they should do more blood cultures.. and the nurse is checking to see if the ones from yesterday came back yet or not...
They also swabbed his thigh wound last night because its still healing very slowly and was looking a lil wet last night.. but that came back negative today...
They are cleaning it and applying silverdene TWICE a day like originally prescribed.. up until today they have only been doing it once a day...
Chris is rotating all his fun Hawaiian shirts... and some other button downs.. i have to find a fun Christmas button down for Chris...
I bought him a reindeer ornament thing at Target tonight and hung it on the cork board in his room... and i got him a snowman decorated kleenex box to add some christmas cheer to his room...
Anyways, Ava just came in to do Chris's blood cultures...
He is bummed about the temp because they think it might be spiking more later on tonight like it did last night :(
Today was his 4th day of chemo.. which is "Day -6"
Today was his last day of BCNU (carmustine) chemo (which was originally from brain cancer patients) and tomorrow is his last day of fludarabine chemo... And then on Sunday he will have melphalan chemo...
Monday he starts anti rejection drugs... Monday is day -3
Thursday Dec 11th will be bone marrow (stem cell) transplantation or INFUSION
The nurse Asante just stopped in with the CBCs and told us that there are no growths found in the blood cultures that they took yesterday which means so far they are negative...
They are taking more blood now to check again...
His platelets are still ok.. at 173,000
His white blood cells are low... so he will be neutrapenic any day.. they are at 2.2 (they are supposed to be at 4.0 to 10.0 thousand/ul)
RBCs are low.. at 2.72
and thats all I will go on about for now...
I am wondering who is on tomorrow (as far as day shift nurses) and am wondering if I should crash here since its already 945pm... I am supposed to go shopping in the early morning with mom... and i dont want to leave at 2am... just thinking outloud.. anyways...
Oh, so Chris has a neighbor (patient in the next room) who looked really young,.. he would take walks all week in the hallway with a mask on.. holding hands with his girlfriend.. and they always look in the room when they walk by...
turns out he is 20.. has been battling whatever he has.. for 2 years.. and smokes in the bathroom... breaks my heart...
And, there is a criminal on the floor... or so i think.. cus there are officers stationed outside and inside his room at all times... interesting right?
So, when i was home after work today for a bit before i came here... Rex decided to jump on top of my mom's lap while she was writing Christmas cards.. so it made things a lil difficult... but i am attaching a pic
And, on Wednesday, I got a surprise delivery at work from Chris for my birthday.. pretty flowers.. so i am attaching a pic of that too
OK.... talk to you all later
xoxox Jenn
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