Tuesday, October 21, 2008

October 21st




So, today, I come home from work. Jackie, the super nurse/bone marrow coordinator of Dr Strair's.. she calls and tells Chris that Strair should have preliminaries on the biopsy by end of day.. holy shit...


Well, a few hours later... she calls back


It is leukemia. It has comes back


This is exactly why he needed the bone marrow transplant from Day 1 when they first diagnosed him.... because this leukemia can come back THIS fast... and with a vengence...


So... Dr Strair is ready to move him right into bone marrow transplant.


Jackie is working on scheduling a date. We will see the doc on Thursday for final information...


Its disappointing that the leukemia is back before transplant... but the transplant goal is to get rid of the leukemia... and leading up to transplant, he is getting major strong chemo to get rid of a lot before the new bone marrow gets put in...


The good news, is we are getting ready to take care of this nasty disease... its overwhelming.. we had a very overwhelming summer, a more overwhelming few weeks with the leg issues and lumps, and a very very ridiculously overwhelming day. Today was the reality we were ready for, but you never really are totally ready. Shit.. no one thinks they will get hit with this at 28, out of no where.. I am so proud of Chris... he is so strong.. even though he thinks he isnt sometimes...


We are trying as best we can to mentally prepare for this 4-6 week stay in the hospital for transplant... We arent sure how soon Chris will be admitted. Thursday we will most likely know.. it could be as soon as Friday.. it all depends on how fast the donor can be ready to donate his goods... 10 days before transplant day (Day "0") is when they start the chemo for Chris... 6-8 days of chemo and then 2 days of rest.. and then on DAY ZERO is when they transfuse the new bone marrow into Chris....


Let me tell you, this leukemia coming back so damn fast after 3 rounds of chemo and a clean petscan (or almost clean petscan) in July is a reality check... this is exactly why a transplant is necessary to fix him.. and this is also a time to realize how lucky and blessed we are that in the midst of this terrible disease.. this unfair time in our lives.. how great it is that Jackie and the National Database was able to find a donor.. and so soon...


This, is definitely helping us keep the faith.. faith that God is looking out for Chris and me and all of us.. that He has a plan... and we just pray that he is on our side in all of this...


So... on that note... my blog is officially current.. I really wish I thought of starting this blog back in June.. but nonetheless its caught up, it exists and I will update frequently... I will write more in a couple days when we have more information from Roger (Dr. Strair)


Please keep us in your prayers... and feel free to contact us, comment, email, etc..


love you all, Jenn and Chris


2 comments:

MamaBeans said...

tons and tons and tons of love to you both too. i'm thinking about you guys so much that you've actually sneaked into my dreams the past few nights...

christine.rapach said...

You two are always in my thoughts and prayers!!! Love ya both!!!