Saturday, October 18, 2008

Sept 10th to October 2 (Post 3rd Round of Chemo)

Ok... we've been through post-chemo 2 times now. We should know what we are in for.
After the whole blood clot situation of June, doctors decided to put Chris on Lovenox (blood thinner injections) when he is not low on platelets or having surgery)
Guess who volunteers to give him these injections? Me!! I do not think I mentioned that before... but i started that in early July when he first went home. I actually am ok with it.. and Chris prefers it to giving it to himself in the belly
Those are twice a day. However, when his platelets are low after chemo, they pause. And when he is having surgery they pause.
When he came home from Chemo 2, I was giving him neuprogin shots for 10 days. They help the white blood cells build. 3 shots a day-- not fun. So, now after Chemo 3, I am giving him neuprogin again.
September 10 and 11 he is feeling pretty decent. Sept 12th, we go in for bloodwork, counts are ok... platelets are low, so they give him a transfusion, and they make him sick. Throws up.. feels awful.. so they do not do that 2nd spinal tap I talked about in a previous post.
Sept 15th, he goes back in for standard bloodwork.. counts are pretty low (neutropenic) and they give him platelets again. After that, his platelets are still not high enough for a spinal tap. So they send him home. Sept 16th we have a doctors appointment,. We schedule bloodwork for every other day. My mom finds out there is a chicken pox outbreak at her work (daycare)-- so it freaks her out cus she doesnt think she ever had chicken pox.. although her bloodwork shows an immunity. Chris has never gotten them! Ugh.... We find out there is an exact match donor for Chris for the bone marrow transplant! And, we have to schedule for a bone marrow transplant class. It is required. Counts will be going up and he will have the finger surgery soon so we can get it out of the way before the transplant. Sept 18th and Sept 20th are more bloodwork and no transfusions are needed. Sept 24th, Chris's elbow is acting up with tendinitis again... doc prescribes meds. The next day, his elbow is worse. I take him to the doctor to get a cortizone shot which Dr Strair says he can do. Elbow gets better. On Friday Sept 26th, he wakes up with ankle pain shooting up his calf almost like a cramp and up to his hip. I am already at work , so my dad takes him to the doctor (they want to see him)
He gets morphine.. spends the whole late morning and afternoon there. They let him go home. This was my dad's last day of disability. I thank God my dad was around for all these months to help take chris to appointments. I get to the same-day suite and Chris looks so drained. We get to go home though. He is instructed to call if it gets worse. They think he might have a blood clot that was pressing on the nerve or muscle. He gets better a little more each day that weekend. Oh, and it was time that morning to go back on the Lovenox injection.. so we start that, and Doctor feels it would help if there was a blood clot. Sunday, I have lil Ben's Christening. Chris is just not up to par.. he needs to stay in bed... and my dad stays home with him. Dad is going back to work the next day after 6 months of disability and wasnt feeling great either. I go with my mom to the baptism and Chris rests...
October 1st, we have bone marrow transplant class. My mom comes... its a few nurses (including Jackie) and us. I needed my mom to come.. I need someone else in the hosuehold to hear first-hand how serious a lot of these things are. Everything from sanitizing the house, throwing out leftovers pretty quickly, cat scratch prevention, no plants in the house, etc...
and all the possible complications during and after the transplant... craziness...
I will tell you more about that later
October 2nd, Chris has surgery to remove the pseudo tumor on the finger and we are awaiting the transplant... The surgery goes well... Doctor has to remove a nerve that the tumor was wrapped around.. and he will have no feeling on one side of his finger, but its ok. He is ok with it.

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