We had visitors today--- and more hospital "stuff"

OK... so Chris is getting lots of Delaudid ( major pain meds through IV) and steroids.. they are trying to work out the right doses and see if his pain gets better....
They did a mugascan yesterday which tests his heart to make sure he is good to go through the transplant... Today, they did a catscan of the head to make sure they can do the spinal tap tomorrow... They always want to check the spine because thats where his original leukemia presented itself.. and because the leg pain could always be indication of spinal cord compression

They did not think his strength, symptoms, etc seem to be spinal compression which is I think why they arent rushing to do an MRI.... Also, they did an MRI 2 weeks ago which only showed 1 lil nodule... and no spinal compression.. but it seems if his pain isnt under control in the next day, they will be scheduling an MRI... with anastesia of course
also, as long as catscan from today of his head was ok, they should be doing spinal tomorrow...
pulmonary (lung)test would be tomorrow too.. thats another pre- bone marrow transplant test...

Aunt Ro and Uncle Les came today!! I got to meet them... Love them love them love them
They brought Halloween balloons and scarecrow plant and snacks and magazines... it stinks they are all the way in Maryland... but it was so great to see them... it made chris so happy, i know...
They are not only great family... but they are some of the smartest people i know... and Aunt Ro is in the infectious diseases industry so she has been very helpful with checking into chris's diagnosis and treatments.. its so reassuring and helpful (forgive me Aunt Ro, if I messed up describing what you do)

Lew and Matt will be up this week.. so thats great...
we do not know how long he will be in the hospital this week.. depends on getting his pain under control and what they determine is really causing the pain... the pain in hips and chest (sternum atra) is an indication stuff is going on on his bone marrow)...
Bone marrow biopsy was supposed to be outpatient Wednesday.. if he is still here, they will do it here

Remember the Doc (fellow) who couldnt handle the spinal and told us her brain doesnt work?? yea, well i requested that she does not do the chemo push during the spinal since she makes Chris uncomfortable... the nurse even told the doc in charge.... and when i talked to the doc, he tried to tell me she wouldnt be alone (the neuroradiologist is there) but Chris doesnt want her there.. so i re-iterated the issue... Hopefully my request will have worked and Dr Naylor will do the spinal .... or someone else... just not the doctor we dont feel comfy with

ok... well i am going to sign off of here... have a good week everyone! we will keep you posted again tomorrow

xoxoxox